Wednesday, April 20, 2011

Nick Wins Award From OHSAA

Hi all,

Today we received a letter and I'll just share what it said:

To: Nick Hyndman
Re: Ohio High School Athletic Association Courageous Student Award

Congratulations  on being nominated and selected as the recipient of the 2010-2011 OHSAA "Courageous Student Award". You are to be commended for the turnaround you have experienced here at Perrysburg High School. You have overcome adversity with your perseverance and dedication to achieve success. Please plan to attend an awards ceremony on Tuesday May 10th at 6:30 pm.  It will take place in the high school auditorium. Once again, congratulations and I am looking forward to presenting you with this award in May.

Sincerely,
Ray Pohlman
Athletic Director (Perrysburg High School)

Blessings:)
Amy

Toledo Crash Wins Against UT






Hi all!

On Sunday, the Toledo Crash wheelchair football team won its game against The University of Toledo Football Team. Nick played for his second year and was quarterback. He got four touchdowns and most of all, he had a BLAST! He loved it! It's VERY competitive! Congratulations to the entire team! There is an article on The Ability Center of Greater Toledo's website (http://www.abilitycenter.org/) and also, if you are on Facebook, The Toledo Crash have a Facebook page with lots of pictures!

One of the great parts of the day is how blessed we were that we had so many family and friends came to support Nick and the team. We had 22 of our friends/family come to the game and that really meant a lot to us! Thank you to everyone who came out to cheer Nick and the team on! One of the teachers from Nick's school, not one of his teachers, came as well which was SO cool! Nick's former para who has worked with him on and off since third grade, who has dealt with a life-threatening illness over the past year and is still dealing with it, came with us and one of our friends who is living with cancer came. He just had surgery for his cancer the prior month and had only been out once before he came to the game with the rest of his family who are good friends of ours. We think it says a lot and it means a lot to us that everyone came, including these people who have been and are dealing with illness and still came to support Nick! THANK YOU and we love you all! We are just so blessed to have good friends and family. We think over the years, we've made long-lasting, good friends and a small but close group of people who have been on this journey with Nick and us over the past 17 years and a steady part of our lives. We often feel like we get more than we have the opportunity to give to our friends and family, especially when we're dealing with challenges with Nick, and so we know the people in our lives are special and loyal.

After the game, a large group of us went out to eat and I'll say it again, it was just such a nice day! A real "feel good" kind of day!

Congratulations to our niece Maddie who won  several trophies and danced beautifully at a dance competition in Michigan last Saturday. We were lucky to be able to go and watch her dance. She is REALLY a great dancer! We're so proud of her!

So, it was a great weekend for Team Hyndman!

Blessings:)
Amy

Wednesday, April 13, 2011

E-mail from Reader

Hi Amy!

What a wonderful blog you have (and such beautiful kids!)

I came across your blog, and have shared it with my daughter, Angela. She was stillborn, and went fifteen minutes without oxygen at birth. She was diagnosed with spastic diplegia at two years old... but those first two years (as I'm sure you know) were a rollercoaster ride all by themselves. We've been fortunate in that her CP has not been as severe as it could have been. But, she has still faced challenges in everyday life (sometimes unknowningly). I've always taken a pro-active approach with her treatment(s) and have never allowed her to give up easily. Since Angela's diplegia has been so under-the-radar, for many years Angela has been under the impression that "SHE" was the "only one" who had these challenges.

I think it's great that you are sharing your family experiences with others, and I thank you for doing so :-).

Sharing your blog/story with her allowed me another opportunity to "prove" to her that having any type of disability, no matter how severe or mild it may be, is not an inhibitor in life and should never be the "crutch" for giving up or not trying. (Apparently, when she turned 10, I went from "all-knowing" to "knowing nothing" so showing her stories such as Nick's is the only "real proof"!).

A very good friend of mine has been working on a project that has this very goal in mind. Angela and I have jumped onboard 100% and we'd like to share it with you, possibly get some feedback, and hope that you will share it, too. Please take a look at the trailer that's posted online and let us know what you think.:
http://www.indiegogo.com/the-cohesion-project

If you'd like, you can contact the director, Doug Bollinger, personally (I've also included him in this email).
I am looking forward to hearing back from you, and to keeping up with your blog!

Thank you,

Elizabeth Magistro &; Angela Beller

(Post of The Cohesion Project Info. below!)

The Cohesion Project


 email: thecohesionproject@gmail.com

Toledo Blade Article 4/13/11 on Toledo Crash Football Team

Hi all,

I've attached an article from The Toledo Blade's website of an article that came out today on the Toledo Crash, the Wheelchair Football Team Nick plays on. The pictures didn't copy  but if you go to the Blade's website, http://www.toledoblade.com/ to read the article ( I typed "wheelchair" in the search engine on their page and the article came up!), there is a picture of Nick.

Blessings:)
Amy

Published: 4/13/2011 - Updated: 5 hours ago


Wheelchair team predicts victory over Rockets


Toledo Crash to play football against UT squad


BY MARK REITER

BLADE STAFF WRITER


Amit Goyao, left, of Toledo, tries to 'tackle' Nick Hyndman, right, a member of the Toledo Crash wheelchair football team from Perrysburg, during a scrimmage with the University of Toledo Rec Therapy Club. THE BLADE/AMY E. VOIGT Enlarge
Photo Reprints Sean O'Mara is at the top of his game.

Although players on the opposing squad are younger, bigger, and more athletic, the 41-year-old Toledoan is predicting that his team, Toledo Crash, will upset the Rockets.
"I am highly competitive. In fact sometimes I hold back a little bit. But not against the University of Toledo. I predict it will be very close, with a Toledo Crash win," Mr. O'Mara said while taking a break at a recent scrimmage.

The Toledo Crash, founded 10 years ago, is a wheelchair team organized by the Ability Center of Northwest Ohio in Sylvania. They will take on members of the UT football team at 2 p.m. Sunday at the UT Recreation Center on campus.

Mr. O'Mara, who was born with cerebral palsy and is among the eight Crash players, has been playing wheelchair football since he was 11 years old. He said he loves the competition because it has opened doors for him to meet people while demonstrating that there are no barriers for people with disabilities.

"I think that in my situation I have gotten great opportunities to meet wonderful people. It is not about winning or losing but about getting out there and competing," said Mr. O'Mara, a UT graduate and member of the Ability Center board of trustees.

The game is played on a regulation basketball court in wheelchairs, either manual or motorized, with five to seven players a side. Players follow basic football rules to move a Styrofoam football down the court into end zones to score points. Each touchdown is worth 6 points.

However, the game has specific rules for three levels of players according to disability.

Level 1 players have fully functioning arms, hands, and eyes. They must catch and hold onto the ball and must touch another player to tackle him and cannot tackle him by touching his chair. Grabbing a chair is considered holding.

The UT football team participates in Level 1.

Level 2 players have limited arm and hand movement or are visually impaired. In catching, the ball must hit them anywhere between the hands and elbows with enough force that some deflection occurs in the flight of the ball -- the ball grazing the hair on a knuckle doesn't count.

Chris Clarke, left, a member of the Toledo Crash wheelchair football team from Toledo, tries to 'tackle' Chelsea Lasater, of Toledo, during a scrimmage with the UT Rec Therapy Club. THE BLADE/AMY E. VOIGT Enlarge
Photo Reprints Fielding the ball on kickoffs requires having it hit or bounce anywhere into the front of the body or chair, or running over the ball. After "catching" the ball or gaining possession, they can "run" with the ball.

In Level 2, a tackle occurs when a player's body of chair makes contact with an opposing player's body or chair.

A player can recover the ball by trapping it under his chair.

Level 3 players have minimal or no arm movement or are blind. They must abide by the same rules as Level 2 players except in making pass completions. Those require that the player must be hit in the front or side of the body from the waist up or in the back of the head or wheelchair headrest.

Mark Armstrong, a community connections coordinator with the Ability Center, said the rules put players, regardless of handicaps, on equal footing.

"The game allows someone with a disability to compete with another player without disabilities. It certainly levels the playing field. But even more it gives a person who is not disabled a keen awareness of the difficulties that someone with disabilities has with the activities that we all take for granted," he said.

Sally Ross, 46, is the only woman on the wheelchair squad. Legally blind and a Level 2 player, Ms. Ross said she plays wheelchair football because it's fun. She is a charter member of the Crash and has played in every match-up in the annual event with UT.

"This is the only team that I know," she said.

New to the Crash is Andrew Arthur, 23, a native of Brazil who is living in West Toledo while his parents serve as missionaries with a local church. Mr. Arthur, who was born with spina bifida, said that he and his teammates are really good at handling wheelchairs, giving the Crash an advantage over the more athletic UT football squad.

"I think we surprise people," the rookie said. "We can control our chairs better. The UT football players are bigger, but we know how to work our chairs."

Contact Mark Reiter at: markreiter@theblade.com or 419-724-6199

Nick's Last IEP Meeting !!!!

Hi all,

Yesterday, April 12, 2011, was Nick's LAST IEP (Individual Education Plan) Meeting!

For those of you who don't know what an IEP meeting is, here is a brief explanation from http://www.nichcy.org/ (National Information Center for Children and Youth With Disabilities):

"When a child receives special education services under the Individuals with Disabilities Education Act (IDEA), he or she must have an Individualized Education Program (IEP). This is a written document listing, among other things, the special educational services that the child will receive. The IEP is developed by a team that includes the child’s parents and school staff.


The IEP is an extremely important document in the educational lives of students with disabilities receiving special education under IDEA. The resources we’ve listed below will help you learn more about IEPs—what the law requires, what information a typical IEP contains, how IEPs are developed, and so on."

So, by law, infants and toddlers with disabilities receive early intervention services and the family and professionals have IFSP meetings every three months. Nick had these services and we had his IFSP meetings every three months. Then, when Nick was turning three, and starting preschool, he qualified for special education services under the IDEA (Individuals with Disabilities Education Act).

We had Nick's first IEP meeting when he was 2 1/2 and his last was yesterday at the age of 17. He could receive special education services until the age of 22 but he is graduating from high school next month and starting college in the fall. I'll be doing research on what services Nick will qualify for in college and from which agency he receives services from over the next year and I'll be blogging about all of that. Basically, I'll share our journey as we go. As this is going to be all new to us, we can go on the journey together and I'll share anything I learn in case anyone else can benefit from the information! I just want to get through graduation next month and then my focus will be college!

Back to Nick's last IEP yesterday, we basically just met to go over his final summary of performance his teacher wrote up so we can share it with the university. It outlines what services Nick has needed to be successful in school so far and what he may need in college. Every college has a disability services office, which they are all named something different, and that's who I'll be contacting next month.
The meeting yesterday was brief and relaxed, very unlike many of the previous IEP meetings we had over the years.

I was reliving many moments in my head of all of the previous IEP meetings we had. I was remembering how several people doubted (out loud!) Nick would graduate high school in regular education classes and when we talked about college, people looked at us like we were in major denial! I always believed Nick would show them what he could do and that is just what happened. We were called "overly hopeful" parents by one school professional and Nick was labeled "non-restorable" by our insurance company as an infant. It makes me sick to think what would have happened if we or he believed that. Yeah, I guess they were wrong! We had hope and no one should ever take away a family's (or individual's) hope. We felt that we'd do everything we could and if their predictions were right, we'd love Nick and know we did everything we could. It didn't take long though before we knew how smart he was and they thought we were just crazy parents! Then later, it was Nick's (and our) goals that were crazy. I felt like the "crazy pain-in-the-ass" mother every time I walked into the school! ( I thought that's what THEY thought:)!) I can honestly say, I wouldn't change anything when I look at how Nick showed us all what he CAN do! Yeah Nick!

Grade school was up and down, jr, high was tough for Nick socially, and each year of high school got better and better for Nick in every way. I'd say he is now the happiest he's been in school. We've developed a good working relationship with the school over the years, even though we've had MANY disagreements, meetings to resolve issues, we've been respectful of each other and now here we are! So many people doubted Nick and us. Nick did it, all As and Bs, and he's graduating! I just had a real sense of peace I've never had before or after any other meeting.

I know we have a lot of work to do to help Nick figure things out for college, getting a van with a lift, services, etc., but I feel we can do it and I know he can do it! It can and will be done. We will likely have some ups and downs along the way, but we can do it as a team. As long as Nick wants us to, we'll be here to help him succeed (Isabella too!) and do whatever it takes. Team Hyndman!!

Blessings:)
Amy

Another Great Quote

Hi all,

I've said it before, I'm a "quote-a-holic". A friend shared this one with me and I love it! I've always been annoyed by people who don't "get involved" or are just self-involved. Standing by and saying or doing nothing when bad things are happening, to me, is just not right. I think all human beings have a responsibility to protect children and innocent people, people with disabilities, and  those who are elderly, and just anyone who can't protect themselves. Anyhow, I don't want to get on a soap-box. I'm just saying this as the quote my friend sent me reminded me of these beliefs.

Anyhow, here it is:

"The darkest places in hell are reserved for those who, during times of moral crisis, maintain their neutrality." - Dante Alighieri

Blessings:)
Amy

Sunday, April 10, 2011

Last Day Of Spring Break

Hi all,

This past week, the kids have been on spring break and today is the last day. Luckily, Greg was off for all of the break but he had to go back to work today as he is saving days for our trip in June! So the kids and I are having a lazy day today, catching up with e-mails, hanging out.

Because we're going to Hilton Head in June for Nick's graduation, no big trip for spring break. We just spent the week eating out, watching movies (Hop was SO cute!), staying up late, sleeping in, having sleep-overs with friends and getting together with friends and family. It was perfect! It's nice to have the time together, just the four of us, and do what we want to do when we want to do it:)

I am almost finished with Nick's graduation announcements and plan to mail them out this week. (yeah!) So, the countdown is on for the end of school, Bella's dance recital, Nick's graduation and getting ready for our trip. We got the house for our trip, a beautiful three-story beach house, with our own pool and jacuzzi, lots of amenities and room for us and family. We're so excited to see the dolphins and sea turtles and just "chill" on the beach and in the pool. Can you tell we're excited?

We found out this week, Nick's going to have his wisdom teeth pulled this summer. Once we get through the next few months, it's full speed getting ready for college and there will be so much planning to do with this. I will  be writing a lot about it and plan to do some research on useful information for individuals with disabilities and college planning, which I plan to post over the next year as I find it. Maybe it will be helpful for someone else too.

Until next time........
Blessings:)
Amy