Tuesday, April 27, 2010

Family Information Network May-June 2010 Calendar of Events

Greetings,



I am Laurie Mold, and I work with Diane Frazee at United Way Family Information Network. I am sending you an electronic version of the May/June FIN 2010 Calendar of Events, and attachments for the following upcoming events:



Project S.P.E.A.K., a series of parent networking sessions through BGSU, Toledo Children’s Hospital and the Lucas Co Board of DD on 5/10/10 & 6/14/10
The Sensory Learning Program Seminar 5/11/10 6:00pm with Dr. Jeffrey Schmakel at the Ramada on Secor Rd.
Miss Barb’s Kindermusik summer classes starting June 8th
· Hey, Speech! Private summer speech programs with Martha Huss Buchholz, M.Ed., CCC-SLP

Ready to Work Academy from The Arc of Lucas County running 7/27/10-8/6/10 providing young adults (ages 17-25) with information and tools about what they need to get and keep a job and parent workshop to help parents understand and reinforce what their sons/daughters are learning.


Also, be sure to visit our website at www.unitedwaytoledo.org/FIN


If you have information you would like to share please send us an-email. If you no longer wish to receive this e-mail please reply as NO SEND.



Take Care,



Laurie Mold Information and Assistance Specialist


Family Information Network


United Way of Greater Toledo
424 Jackson St. Toledo, OH 43604
Phone: 419-254-4644 Fax: 419-246-4614
www.unitedwaytoledo.org


GIVE. ADVOCATE. VOLUNTEER. LIVE UNITED™

Nick's Golf Camp Write-Up

Hi all,
Below, I'm posting a little write-up Nick did re: golf camp he attended and helped with last summer through The Ability Center of Greater Toledo at Crosswinds Golf Course.
Blessings:)
Amy

Here it is:

Hi Nick,
I hope your family had a wonderful weekend and Easter break!
I’m writing because Dave Sanford, from Crosswinds Golf Course, contacted me the other day and asked if I had anyone in mind that we had worked with who would be interested in sharing their story about how the inclusive golf experience has impacted their life. I thought of you right away and how much you have enjoyed the program and how much growth it gave you as a leader with the inclusive golf camp last summer. If you’d be interested in sending me your story so that I can share it with Dave, I would greatly appreciate it! If not, I completely understand J
If you’d like more details feel free to send me an email or give me a call and I’d be happy to expand.
Thanks!
Dawn M. Petersen


Director of Youth and Transition Services


The Ability Center of Greater Toledo


5605 Monroe St.


Sylvania, OH 43560


(419)885-5733 ext.233


www.abilitycenter.org


www.twitter.com/abilitycntr


www.facebook.com/abilitycenter
The Mission of The Ability Center is to assist people with disabilities to live, work and socialize within a fully accessible community.



Dear Dave,

My name is Nick Hyndman, I am 16 years old, and I have Cerebral Palsy (CP). Which affects my motor skills, such as walking and my speech. I have been a part of Camp Cricket of the Ability Center for about 8 years now. This camp is for kids with and without disabilities. I have been a camper up until last year, and now I volunteer as a counselor. Camp Cricket is a wonderful program, and last year, I did the golf camp that was associated with Camp Cricket as well, and I loved it. So, when I was done with the teen session, in which I was a camper, I decided to volunteer as a counselor for the younger kids session. But little did I know about some wonderful things I was about to experience. See, Camp Cricket has great messages and I didn’t fully understand them until I decided to volunteer as a counselor.

Like I said before, this is a camp for kids with and without disabilities. One major message that this camp teaches is inclusion. It teaches the kids without disabilities to include everyone and to see everyone for who they truly are and not judge based on appearances. Even if a kid is unable to do as much activity that an able body is capable of doing, they find a way to get the person involved. No one is left out and that’s my job, to help these kids who want to be involved and included, but are not sure how. Which also teaches these kids how to socialize and stand up for themselves. I think another message the camp gets across is freedom. As well as teaching these kids life lessons, it also gives them freedom. This camp is a about having a good time, and for a kid who maybe goes through daily struggles like pain or worrying about being made fun of, or afraid of not being included, this camp provides them with a time to be free of their problems or worries.

As I also mentioned before, I was not able to completely understand these messages until I was a counselor for the golf program. Because when you’re a camper there, you don’t stop to think about these things, it makes you free and all you can focus on is having a good time. When you are on the other end of it though, I think it’s more amazing than being a camper. The group of kids I was with was ages 5-9. I loved all of them; they were all different in some way, which was great because it taught them to accept everyone, regardless of how different they may be. Myself, I love sports, and I am living proof of a couple quotes I love. “Never give up” and “Never let anyone get in the way of your dreams”. My greatest sport accomplishment is one that no one ever expected do to, I completed a season of high school wrestling. But anyways, I saw that these kids were living proof of these quotes as well. Despite of their incapability, these kids just wanted to play golf, they never gave up, and you wonder, “How are they going to be able to do this?” But they find a way. There was one kid, Jalen, who was legally blind, and you cannot help but wonder two things, ‘how is he going to play golf, how is he gonna be able to hit the ball?” and then you wonder, “Ok, how can we help him play golf, how can we help him hit this ball?” So, we told him where to stand, and he’d just swing the club and suddenly, just like he did, we all heard the sound of the ball being hit and he ask, “how far did it go?” The ball went maybe 10-15 feet, and then he would say, “wow!!” and he would jump up and down with pure excitement and had a smile that would go from ear to ear. Right there at that moment, I smiled, and knew that is what this camp is all about. Because, at that moment, he was free. He was worry free, happy, and he did something that not only did we wonder how he could do it, he did something that I’m not sure if he knew he could do. That’s why this camp is amazing, that’s why I love my job, and I plan to do this job for many more years. I want to thank you for taking the time to read this, and for giving me the opportunity to tell you about this camp.
Sincerely,

Nick Hyndman

Sharing an E-Mail from Nick's PT (Socialization)

Hi everyone,

I am sharing an e-mail sent to me by Nick's school PT, Ellen Swartz, who has an sister with CP. Ellen said I could share this with everyone.

Blessings:)
Amy

Here is the e-mail:If you would like to, that would be fine with me. When I talk to my mom, she says she wishes she would have had another mom who she could talk to about things. I think your blog is a GREAT way to help other moms and families like ours.
Thanks...e~


--------------------------------------------------------------------------------
Date: Sat, 17 Apr 2010 17:19:41 -0700
From: amyhyndman@buckeye-express.com
To: kbellen@hotmail.com
CC: packerscoach2020@yahoo.com; greg.hyndman@northstarbluescope.com; greghyndman@buckeye-express.com; pjhobbit@bex.net; nanapfw1946@woh.rr.com; papajaw1947@woh.rr.com; dpetersen@abilitycenter.org
Subject: Re: PT at high school


Hi Ellen,

Yes, everything at school is great. We can just keep things as they are.

I appreciate SO much your comments and sharing that about your sister. (made me cry too, I GET it!) I am very touched by that and I hope your sister knows how helpful her sharing that is.
Would you mind if I post that on our blog, that part and say it is from you? I think people could really benefit from that experience. Let me know. Thanks so much Ellen for your kindness and sharing that. It means a lot!

Take Care,
Amy

Amy L. Hyndman
10312 Scarlet Oak Dr.
Perrysburg, Ohio 43551
419-872-7522
amyhyndman@buckeye-express.com
"It's all for the Journey"


--- kbellen@hotmail.com wrote:

From: Ellen Swartz
To: Amy Hyndman
Subject: PT at high school
Date: Sat, 17 Apr 2010 11:19:00 -0400

Hi Amy!

I talked with Nick thursday during his study hall...what a nice young man you have. We talked for a little about school - he seems to have everything he needs set up. Fire drills, bathroom, class changes, on/off the bus, etc. He says he's doing well, no issues from his perspective. I talked with one of his aides and his case manager, and they both agree with Nick - things are going well. Do you have any concerns? I will write up his present levels and send them off to his case manager soon.

We also talked about some social things. I told him how impressed I am with his DRIVE! He is not willing to just sit back and let high school pass by - he is going to participate and be an active student. That impresses me - more than you may know. See, I was talking on wednesday at work at our outpatient office with a mom and her daughter (she is a freshman at another high school) about this same thing. Mom wants her daughter to be a PART of things and to enjoy the next years, but the daughter is not interested. She would rather be with adults...which makes sense, but - she REALLY needs to be a part of her own social group. I get it that is it hard, but I never acutally LIVED it myself. SOOOOO...I sat with my mom and my sister at dinner that night (my sister is 40 and has CP, too) and asked this question:

To my mom: Do you think you did enough to get Connie involved?
To my sister: Do you wish you had been involved in SOMETHING? (she never did in high school)

And this is what happened...my sister cried, my mother cried...ugh. That was NOT my intention! :) BUT - my sister said looking back, she WISHED she would have been able to be a part of something, to make friends because NOW, she still doesn't know how to make friends. She is still very HURT by the teasing she recieved, and is ususally very concerned it will happen again EVEN NOW! 22 years later! WOW.

My mom (as most moms do!) looks back and thinks maybe she DIDN'T do enough, but had always left things ultimately up to my sister. We did have horses (stabled out by Oak Openings), dance lessons, swimming, etc ...but not through the high school.

MY POINT...ugh...sorry that I am going on and on...is that I think Nick is an exceptional young man. I think he will have something to SAY and will be such an asset to people like him - and those who are in their lives. To be a part of the sports teams-either on the side line or on the mat- is an important part of high school. What a brave and SMART guy!

I thank you for raising such an amazing person. He is wise beyond his age! I love spending time with him. I look back 12 (or so) years ago when I saw him with Ann (I was her student, then also worked for her)...what a cool kid he was even then!

I say this sincerely and respectfully,

Ellen Swartz

Thank You Everyone

Hi everyone!

It's been way too long since my last post and I plan to get everyone completely caught up, but we first want to thank everyone, our friends, family, work friends, neighbors, for their kindness, e-mails, calls, well-wishes, prayers, etc. We especially want to thank everyone for the meals and the very generous anonymous gift from "friends" of a Super Suppers Meal and generous gift card to Super Suppers! We have been so touched by every one's kindness and help and generosity while I recover!

For those of you who don't know, a couple of weeks ago I had a bad fall one night. It was late, we had just gotten home from visiting family out of town over the kids' spring break. Charger, Nick's service dog, usually sleeps with Nick, but he was in our foyer. I went in to put some clothes in the laundry room and didn't see him, completely tripped and fell hard over him. Thank goodness he is OK!:) I ended up breaking my ankle pretty badly, sprained my arm and other bruises, but the ankle was the worst. So, I just had surgery on it ( a plate and screws put in) last Wednesday. I haven't been able to put ANY weight on it and won't be able to at all for the next 6 weeks, and can't drive, anything. As you can imagine, we had to figure out how to care for Nick and our family during this time. It's been frustrating and tough for me not to be able to do what I normally do, but I keep my attitude in check by reminding myself that my son, Nick, has a permanent condition that will not allow his body to do what he wants it to do, causes pain, and all that CP entails. My condition is temporary, so I have nothing to complain about. How can I whine and complain when all I have to do is think of Nick and what he lives through every day? So, we had to hire a respite person (with the wonderful help of some good people at Nick's school) to come in every morning and get Nick up and ready and to school and then we have to have people help in the evenings and on weekends when Greg is working. The meals have been a god-send really and keeping us going. I don't know what we'd do without all of the wonderful friends and family we have!:) Hopefully, I get a cast on my leg tomorrow if the swelling has gone down enough so I can get on with the healing process and get back on my feet in 6 weeks!

So, we just really want everyone to know how grateful and humbled we are by your kindness and generosity and it has meant so much to us! THANK YOU!:)

With love,
The Hyndman Family
Greg, Amy, Nick, and Isabella