Hi all,
Taking both kids to the doctor today but wanted to get a quick note here in between appts.
We want to congratulate our niece, Madeline Rick (Maddie),who has been cast as a "little soldier" and "Big Angel A" in the Toledo Ballet's production of the Nutcracker!
She's very excited and we're so proud of her. She's a gifted ballet dancer:) The Nutcracker will be playing on Saturday, December 11th at 2pm and 7pm, and Sunday, December 12th at 2pm! (http://www.toledoballet.net/ ). Isabella and I REALLY enjoyed it last year and it will be even better for us this year with Maddie in it. If you live locally, it is a wonderful production and a great holiday treat!
Blessings:)
Amy
Friday, September 10, 2010
Thursday, September 9, 2010
Lighted Wheelchair Casters
Hi all,
We have been ordering these "light up" wheels for Nick's wheelchair, front wheels (or casters) for years. People stop us and ask us about them everywhere. They're so cool. I've seen adults with them as well as kids. They light up in three primary colors and are $29 a pair right now at Sportaid. www.sportaid.com. (3 " or 4 " lighted wheelchair casters) Check them out if you have someone in a chair, their cool. Nick loves them.
Blessings:)
Amy
We have been ordering these "light up" wheels for Nick's wheelchair, front wheels (or casters) for years. People stop us and ask us about them everywhere. They're so cool. I've seen adults with them as well as kids. They light up in three primary colors and are $29 a pair right now at Sportaid. www.sportaid.com. (3 " or 4 " lighted wheelchair casters) Check them out if you have someone in a chair, their cool. Nick loves them.
Blessings:)
Amy
Sibshops
Hi all!
I received the following information regarding some upcoming Northwest Ohio sibshops. I registered Isabella for all of these! I think it will be a positive experience for her.
I've followed http://www.siblingsupport.org/ for years from time to time (sibshops info: www.siblingsupport.org/sibshops) and have several of Don Meyer's books as I've mentioned previously in this blog. I've ordered them from http://www.amazon.com/ and http://www.woodbinehouse.com/. Anyhow, we've read several books re: disability and being the sibling of an individual with a disability over the years and some books are more for adults which I've read and saved for Isabella when she gets older. The important thing really is just talking about disability (like it's no big deal, it just is, and how everyone feels about it or things going on with Nick at different times) and all of our feelings about Nick's disability, everything he goes through(good, bad, and in between), and it's OK to feel however we feel as long as we're all respectful and loving to each other. I don't like it when people are "complaining" about it as if it "stinks" to have an individual with a disability in the family because NONE of us feel that way. Sure, we don't like to see Nick's struggle or be hurt or anything, that stinks, but HE is a gift and his having a disability is NOT a bad thing! It is just one part of who he is like we all have different parts. With all of that, I think any opportunity for Isabella to connect with others who have siblings with disabilities and be able to talk about it would be a benefit. Isabella won't be shy to say how she feels, believe me. When she was 8, she was on a sibling panel at BGSU (the youngest one) presenting to grad students and she did a GREAT job, was very articulate, and made many good points. Yeah Bella:) We've also always made sure that we spend as much time with Bella as we do Nick when we can. Sure, there ARE times when Nick needs more care and attention but we make sure Bella gets her time too and when things are going on with Nick, we include her as much as we can and talk about it. You'd have to ask her but I don't think there are many times she's felt left out. We're all equal parts of this family, Team Hyndman.
Here is the info. I received about the local sibshops and registration for them. If you know of anyone who may be interested, please pass this information on. Thanks!
Brothers and Sisters of People with Special Needs Come and Join the Fun!
Sponsored in part by:
Lucas County Educational Service Center
Brothers and sisters of kids with special needs from Lucas County now have a program that’s just for them called Sibshops. At Sibshops, they’ll have a chance to meet other kids whose brothers and sisters have special needs and talk about the good and not-so-good parts of having a sibling with a disability. Most important, they’ll have fun!!
Sibshops are for 8 to 13 year old brothers and sisters of children who have special needs. Our Sibshops are run by a team of people who have a professional and, in some cases, a personal understanding of the impact a child’s special needs can have on brothers and sisters. Equally important, they have great kid skills!
Sibshops will have fun outrageous games, cooking activities and hands on activities that will keep your kids engaged in an energetic way.
Saturday, October 2, 2010
9:45 am until 2 pm
Deadline to register for demonstration is September 23, 2010
Don Meyer director of The Sibling Support Project and creator of the Sibshop curriculum will be conducting a hands on Sibshop demonstration. The demonstration will reflect the reality of a Sibshop. Don will engage siblings in fun, energetic hands on games through which he will have siblings express thoughts about what it is like having a brother or sister with special needs.
Sibshops
Gatherings will be:
November 6, 2010
January 8, 2011
February 5, 2011
March 5, 2011
April 2, 2011
May 7, 2011
10 am to 2pm
Deadline to register for Sibshops is October 20, 2010
Sibshops will be held at: Alternate Learning Center 3939 Wrenwood Toledo, OH 43623
If interested in having your child be a part of the demonstration and/or Sibshops please contact :
Wendy Smenner
Lucas County Parent Mentor
lcesc_wsm@nwoca.org 419-471-0384
State Support Team
Region 1
I received the following information regarding some upcoming Northwest Ohio sibshops. I registered Isabella for all of these! I think it will be a positive experience for her.
I've followed http://www.siblingsupport.org/ for years from time to time (sibshops info: www.siblingsupport.org/sibshops) and have several of Don Meyer's books as I've mentioned previously in this blog. I've ordered them from http://www.amazon.com/ and http://www.woodbinehouse.com/. Anyhow, we've read several books re: disability and being the sibling of an individual with a disability over the years and some books are more for adults which I've read and saved for Isabella when she gets older. The important thing really is just talking about disability (like it's no big deal, it just is, and how everyone feels about it or things going on with Nick at different times) and all of our feelings about Nick's disability, everything he goes through(good, bad, and in between), and it's OK to feel however we feel as long as we're all respectful and loving to each other. I don't like it when people are "complaining" about it as if it "stinks" to have an individual with a disability in the family because NONE of us feel that way. Sure, we don't like to see Nick's struggle or be hurt or anything, that stinks, but HE is a gift and his having a disability is NOT a bad thing! It is just one part of who he is like we all have different parts. With all of that, I think any opportunity for Isabella to connect with others who have siblings with disabilities and be able to talk about it would be a benefit. Isabella won't be shy to say how she feels, believe me. When she was 8, she was on a sibling panel at BGSU (the youngest one) presenting to grad students and she did a GREAT job, was very articulate, and made many good points. Yeah Bella:) We've also always made sure that we spend as much time with Bella as we do Nick when we can. Sure, there ARE times when Nick needs more care and attention but we make sure Bella gets her time too and when things are going on with Nick, we include her as much as we can and talk about it. You'd have to ask her but I don't think there are many times she's felt left out. We're all equal parts of this family, Team Hyndman.
Here is the info. I received about the local sibshops and registration for them. If you know of anyone who may be interested, please pass this information on. Thanks!
Brothers and Sisters of People with Special Needs Come and Join the Fun!
Sponsored in part by:
Lucas County Educational Service Center
Brothers and sisters of kids with special needs from Lucas County now have a program that’s just for them called Sibshops. At Sibshops, they’ll have a chance to meet other kids whose brothers and sisters have special needs and talk about the good and not-so-good parts of having a sibling with a disability. Most important, they’ll have fun!!
Sibshops are for 8 to 13 year old brothers and sisters of children who have special needs. Our Sibshops are run by a team of people who have a professional and, in some cases, a personal understanding of the impact a child’s special needs can have on brothers and sisters. Equally important, they have great kid skills!
Sibshops will have fun outrageous games, cooking activities and hands on activities that will keep your kids engaged in an energetic way.
Saturday, October 2, 2010
9:45 am until 2 pm
Deadline to register for demonstration is September 23, 2010
Don Meyer director of The Sibling Support Project and creator of the Sibshop curriculum will be conducting a hands on Sibshop demonstration. The demonstration will reflect the reality of a Sibshop. Don will engage siblings in fun, energetic hands on games through which he will have siblings express thoughts about what it is like having a brother or sister with special needs.
Sibshops
Gatherings will be:
November 6, 2010
January 8, 2011
February 5, 2011
March 5, 2011
April 2, 2011
May 7, 2011
10 am to 2pm
Deadline to register for Sibshops is October 20, 2010
Sibshops will be held at: Alternate Learning Center 3939 Wrenwood Toledo, OH 43623
If interested in having your child be a part of the demonstration and/or Sibshops please contact :
Wendy Smenner
Lucas County Parent Mentor
lcesc_wsm@nwoca.org 419-471-0384
State Support Team
Region 1
Tuesday, August 24, 2010
The Ability Center of Greater Toledo's 90th Birthday
Hi all,
The Ability Center of Greater Toledo, (www.abilitycenter.org) , is celebrating their 90th birthday. The Ability Center of Greater Toledo began as The Toledo Society for Crippled Children in 1920.
On Thursday, September 9th, from 5 until 9pm, The Ability Center will be
celebrating its 90th birthday (Woo-Hoo!) with a casual,... after-work gathering
at The Pinnacle. We would love to have you join us! BRING YOUR FRIENDS!! A cash bar (with specialty frozen drinks),A lite Dinner provided from 6 to 8pm (with cake to follow),Music by “The Trainwreckers” ,Astrology readings by Sue Lovett ,A lovely evening on the Pinnacle patio (rain or shine).Cover charge of $10 per person includes Food, Music and Donation (proceeds to ACT).21 and over please.Should you have questions, please call or email Amy Kerchevall, ACT Events Coordinator:
419.885.5733 begin_of_the_skype_highlighting 419.885.5733 end_of_the_skype_highlighting, 866.885.5733 begin_of_the_skype_highlighting 866.885.5733 end_of_the_skype_highlighting (Toll-free) or akerchevall@abilitycenter.orgThe Pinnacle is located at 1772 Indian Wood Circle in Maumee (in Arrowhead Park)
Blessings:)
Amy
The Ability Center of Greater Toledo, (www.abilitycenter.org) , is celebrating their 90th birthday. The Ability Center of Greater Toledo began as The Toledo Society for Crippled Children in 1920.
On Thursday, September 9th, from 5 until 9pm, The Ability Center will be
celebrating its 90th birthday (Woo-Hoo!) with a casual,... after-work gathering
at The Pinnacle. We would love to have you join us! BRING YOUR FRIENDS!! A cash bar (with specialty frozen drinks),A lite Dinner provided from 6 to 8pm (with cake to follow),Music by “The Trainwreckers” ,Astrology readings by Sue Lovett ,A lovely evening on the Pinnacle patio (rain or shine).Cover charge of $10 per person includes Food, Music and Donation (proceeds to ACT).21 and over please.Should you have questions, please call or email Amy Kerchevall, ACT Events Coordinator:
419.885.5733 begin_of_the_skype_highlighting 419.885.5733 end_of_the_skype_highlighting, 866.885.5733 begin_of_the_skype_highlighting 866.885.5733 end_of_the_skype_highlighting (Toll-free) or akerchevall@abilitycenter.orgThe Pinnacle is located at 1772 Indian Wood Circle in Maumee (in Arrowhead Park)
Blessings:)
Amy
Cerebral Palsy Family Wins Award
Hi all,
Cerebral Palsy Family has won an award. I got the message today. Here is the info.:
Dear Amy,
Congratulations! Anne here, and your blog, Cerebral Palsy Family, was
determined to be one of the top resources in the medical field. And so, it
has received our 2010 Top 20 Cerebral Palsy Blogs award presented by Medical
Assistant Schools!
You can see your name amongst our winners here at:
www.medicalassistantschools.org/top_cerebral_palsy/#Cerebral_Palsy_Family
Winners were chosen through a scoring system led by internet nominations,
which came from your reader base!
You can let your readers know you won by embedding the badge code to one of
the different awards graphics found at:
www.medicalassistantschools.org/top_cerebral_palsy/badges/.
If you choose to accept or decline the award, please let me know.
Please do not hesitate to call or email if you have any questions. Many
questions can be answered at
www.medicalassistantschools.org/top_cerebral_palsy/about/.
Again, Congratulations, and I hope to see your badge soon!
Cheers,
Anne Holt
4252294915
medicalassistantschools.org
Presented by: Medical Assistant Schools
Blessings:)
Amy
Cerebral Palsy Family has won an award. I got the message today. Here is the info.:
Dear Amy,
Congratulations! Anne here, and your blog, Cerebral Palsy Family, was
determined to be one of the top resources in the medical field. And so, it
has received our 2010 Top 20 Cerebral Palsy Blogs award presented by Medical
Assistant Schools!
You can see your name amongst our winners here at:
www.medicalassistantschools.org/top_cerebral_palsy/#Cerebral_Palsy_Family
Winners were chosen through a scoring system led by internet nominations,
which came from your reader base!
You can let your readers know you won by embedding the badge code to one of
the different awards graphics found at:
www.medicalassistantschools.org/top_cerebral_palsy/badges/.
If you choose to accept or decline the award, please let me know.
Please do not hesitate to call or email if you have any questions. Many
questions can be answered at
www.medicalassistantschools.org/top_cerebral_palsy/about/.
Again, Congratulations, and I hope to see your badge soon!
Cheers,
Anne Holt
4252294915
medicalassistantschools.org
Presented by: Medical Assistant Schools
Blessings:)
Amy
One Year of Cerebral Palsy Family
Hello all!
I apologize that it has been far too long since my last update. I have to admit, summer has been so busy this year and we haven't been home much so I did take more time away from the blog than I planned! I hope everyone had a wonderful summer.
Well, July 2010 marked the one-year mark since I started this blog, Cerebral Palsy Family, http://www.cerebralpalsyfamily.blogspot.com. I knew NOTHING about blogging and still have a lot to learn but I've enjoyed it so much. My goal for this next year is to bring more resources and information to everyone and to keep our family updates coming. This next year is a big transition year for Nick as he is entering his senior year of high school. We'll have a lot going on with that and getting ready for life after high school for Nick, including getting his drivers license (I'll update you on that...), preparing for and starting college, securing disability services at college, Nick's applying for Social Security Disability once he turns 18 next summer, and more. It's a transition for everyone at his age, but as I always say, it's with the "added layer", and this is a BIG layer, of "disability stuff" in addition to all of the "normal" (what is "normal"?-a discussion for another time) stuff.
Thank you to anyone and everyone who has taken the time to read the blog and share in our lives and for the positive comments and support! I hope this year we can reach more people and get more people living with CP, and their families, sharing as well. It seems that on Facebook, we have more followers (our group on Facebook, Cerebral Palsy Family was created as a "link" to this blog) than we do for this actual blog. I have some work to do!!
Since my last post, Nick has finished his work at The Ability Center of Greater Toledo (volunteer camp staff) for the summer and all of his camps, completed the classroom portion of driving school and an evaluation by a driving instructor who works with individuals with disabilities (we are still waiting on the report in writing), had his 17th birthday on August 18th (Happy Birthday to the best son in the world!), had his senior pictures taken (WOW-they are amazing, I can't wait to share them when we get them in approx. 2 weeks) and starts his senior year at school tomorrow. His service dog, Charger, is winning the battle over his weight (he's been overweight) by walking 5-6 days a weeks on the treadmill (while it's been so hot out and also, it's easier for Nick to take care of this on his own now!) and is looking fantastic. Now we know how to keep his weight under control and how to give him enough exercise when we can't get outside and walk him. Isabella has enjoyed her camps this summer and I took her to Columbus, Ohio 2 weekends ago to see the Justin Bieber concert, her first concert. We had a BLAST and it was SO fun seeing her dance and sing and "go crazy" (baby, baby, oh!!!!!!!!!!). Fun! She starts 5th grade, her last year in elementary school tomorrow. She starts dance next week. I'm always a little sad when they go back to school because I love spending more time with them in the summer. I am, however, always excited for them too of course!!
Another thing I've really let go this summer is keeping up with my pictures, putting them on the computer, etc. I WILL be doing this soon and posting some great pics from this summer! ( I really will!) I guess I just got caught up in the summer and let things go so we could have more family time together while the kids were off. Now that Nick is 17 and Bella is almost 11, I am feeling even more like time is FLYING by and I feel like Greg and I have to take every minute we can with them while they can, before they get "too busy" and into their own lives.
Blessings:)
Amy
I apologize that it has been far too long since my last update. I have to admit, summer has been so busy this year and we haven't been home much so I did take more time away from the blog than I planned! I hope everyone had a wonderful summer.
Well, July 2010 marked the one-year mark since I started this blog, Cerebral Palsy Family, http://www.cerebralpalsyfamily.blogspot.com. I knew NOTHING about blogging and still have a lot to learn but I've enjoyed it so much. My goal for this next year is to bring more resources and information to everyone and to keep our family updates coming. This next year is a big transition year for Nick as he is entering his senior year of high school. We'll have a lot going on with that and getting ready for life after high school for Nick, including getting his drivers license (I'll update you on that...), preparing for and starting college, securing disability services at college, Nick's applying for Social Security Disability once he turns 18 next summer, and more. It's a transition for everyone at his age, but as I always say, it's with the "added layer", and this is a BIG layer, of "disability stuff" in addition to all of the "normal" (what is "normal"?-a discussion for another time) stuff.
Thank you to anyone and everyone who has taken the time to read the blog and share in our lives and for the positive comments and support! I hope this year we can reach more people and get more people living with CP, and their families, sharing as well. It seems that on Facebook, we have more followers (our group on Facebook, Cerebral Palsy Family was created as a "link" to this blog) than we do for this actual blog. I have some work to do!!
Since my last post, Nick has finished his work at The Ability Center of Greater Toledo (volunteer camp staff) for the summer and all of his camps, completed the classroom portion of driving school and an evaluation by a driving instructor who works with individuals with disabilities (we are still waiting on the report in writing), had his 17th birthday on August 18th (Happy Birthday to the best son in the world!), had his senior pictures taken (WOW-they are amazing, I can't wait to share them when we get them in approx. 2 weeks) and starts his senior year at school tomorrow. His service dog, Charger, is winning the battle over his weight (he's been overweight) by walking 5-6 days a weeks on the treadmill (while it's been so hot out and also, it's easier for Nick to take care of this on his own now!) and is looking fantastic. Now we know how to keep his weight under control and how to give him enough exercise when we can't get outside and walk him. Isabella has enjoyed her camps this summer and I took her to Columbus, Ohio 2 weekends ago to see the Justin Bieber concert, her first concert. We had a BLAST and it was SO fun seeing her dance and sing and "go crazy" (baby, baby, oh!!!!!!!!!!). Fun! She starts 5th grade, her last year in elementary school tomorrow. She starts dance next week. I'm always a little sad when they go back to school because I love spending more time with them in the summer. I am, however, always excited for them too of course!!
Another thing I've really let go this summer is keeping up with my pictures, putting them on the computer, etc. I WILL be doing this soon and posting some great pics from this summer! ( I really will!) I guess I just got caught up in the summer and let things go so we could have more family time together while the kids were off. Now that Nick is 17 and Bella is almost 11, I am feeling even more like time is FLYING by and I feel like Greg and I have to take every minute we can with them while they can, before they get "too busy" and into their own lives.
Blessings:)
Amy
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