We are The Hyndman Family, or "Team Hyndman" as we call ourselves: Greg, Amy, Nick, and Isabella. This blog is created to share our story and experiences living with Nick's disabilities. Nick has cerebral palsy and progressive hearing loss. We hope we are able to share not only our story, but information and resources we've learned about along the way, educate others about cerebral palsy, and meet other families and individuals living with cerebral palsy.
Tuesday, May 21, 2013
Toledo Crash Video Made By Chris Clarke on YouTube
Hi all,
OK, I am getting carried away with the videos, I know. I had to post this one, I love it. Turns out, if I'd ever taken the time to look on You Tube, there are a BUNCH of videos of The Toledo Crash posted by Chris Clarke, one of Nick's team mates.
Blessings:-)
Amy
Another One! Toledo Crash's Practice on 3/13/13
Hi all,
Found ANOTHER video I hadn't viewed of The Toledo Crash's 3/13/13 Football Practice. Nick's in the chair with white (and black of course) wheels and a dark gray shirt and khaki pants.
Blessings:-)
Amy
2012 Toledo Crash VS. Toledo Rockets
Hi all,
As I was looking for the April 21, 2013 game video / news piece to post, I found this 2012 video that I personally had never viewed before!
Blessings:-)
Amy
Thursday, May 9, 2013
We're Back!
Hi all,
I don't even know where to start as it has been so long since my past post! Thank you for anyone still reading this for your patience! As you may know if you've read my previous post, I've been ill this past year (actually before that even) and if I am going to be totally honest, it has really been a horrible year with my recovery. Hey, I want to be truthful and not just "put a socially acceptable mask" on what I write. I've always done that in a sense, at least in my personal life, "put a positive face" on (for lots of reasons) and tried to hide the truth about the tough stuff or keep it to myself and with all that has happened, I just have no desire to do that anymore. I want to continue to keep a positive attitude as much as possible, but I'm human. So, here is the update. I am doing a lot better but still working on my recovery. I still have a lot to do physically. I will be on my antibiotics for the rest of this month and then off of them for the first time in a year and have to get blood work every three weeks until the end of the year. I will probably at some time need another back surgery but I hope not anytime soon. Pain-wise, I am in constant pain between my back and Fibromyalgia and the only way my back pain will improve will probably be with surgery but it is not a 100% guarantee per my neurosurgeon and so I am going to try physical therapy and acupuncture which I am starting soon. I still have open wounds on my feet from Hilton Head (June 2011) burns on the beach on my feet, so that has kept me from doing the PT and more before now as well as pain and side effects from meds. I am weaning off of other meds too for pain and seizure meds, etc. but am having a hard time with that too. I am much more alert than I've been since last May when I went into the hospital, and I like that! I hate feeling "drugged up" and sedated. I have decided to go see a counselor/therapist too and am in the process of looking for one. I have no shame in sharing this, nor should I. Let's me honest.....being sick for so long, almost losing my life last May, being in constant pain, having to burden my family and loved ones with taking care of me and everything else (the house, meals, the pets) which makes me feel really guilty and badly and has caused a lot of issues, well, all of this has made me depressed. One more thing I need to deal with and I am going to do just that. I realize that I am not a "super woman" like some women are, I am just human and don't want to be a burden anymore, so I know I need help!! I am actually looking forward to the trying acupuncture, PT when I can, and talking to a counselor or therapist who can help me figure out where to start and go from here! Having shared all of that, these are the reasons I have not written or posted or kept on on Facebook or e-mail for some time now.
Team Hyndman has had a lot of things going on since my last post!!! We have a new addition to our family! Over the holidays/New Years, we got a new puppy, Olive Lou Hyndman. She is now 6 months old and is a Boston Terrier like our Oreo was. She is so fun, full of love, and a spit-fire! We love her and she keeps us busy!! Ozzie and Charger love her too.
Nick just finished his second year at The University of Toledo and is still a business major and wants to minor in Disability Studies. He's been busy this year with The Toledo Crash (wheelchair football team) and they played at Lourdes College and again against The University of Toledo football team and The Crash won and Nick got MVP for the game! They were on the news, which I'll post on here soon. He's been writing more music and recently spoke for a local school district in Findlay, Ohio for a disability awareness expo.
Isabella has been enjoying 7th grade, band and choir at school and she took the year off of dance this year and I'm not sure how she feels about that. I think she is trying to figure out what she wants to do, be social, get good grades, and be a 13 year old girl! She is still even more of an animal lover and such a big help to everyone in the family! She loves to cook, and cooks a lot of meals and bakes a lot. She's always thinking of others, doing things for others, and is not worried (at all) about being "popular" or self-centered like a lot of girls her age seem to be. She's super sensitive, which I think is one of her best qualities, and with maturity and experience, this will serve her and the world very well. It's hard to be so sensitive at her age though. She takes after me so I remember what that was like at that age. (ugh!)
A lot has happened with my Mom and Dad since my last post. (PaPa and NaNa Jagel) They just had to put their almost 12 year-old dog, Johnnie, to sleep this past week which was really sad for everyone. He had been my sister's dog, then my Mom and Dad's and he was very sick with cancer. The biggest news is that my Mom is a match for my Dad for a kidney. (I'm not up to writing all of the correct medical terms right now....) They are signed up at Henry Ford Hospital in Detroit, MI. My Mom is having a tough time as she has to get off of her meds for Fibromyalgia so she's in a great deal of pain and is in the process of getting all of the tests needed to be able to donate her kidney to my Dad. I must admit, I have mixed feeling about it all because I worry about them both, but we are just here to love and support them in any way we can. We could still use prayers for them. My Dad is still on dialysis of course and is still helping Nick out as his home health care aide too. (wow!!!) He's still doing things for other people all the time even while in dialysis! My Mom is taking a leave from work with everything going on and how she's been feeling lately getting off of her meds, etc.
We were also sad that Greg's Granny Luther died this year. The kids called her "Great Granny" and when Bella was little she called her "Aunt Granny":-) It's sad because we think of Granny and PaPa at our wedding almost 23 years ago, Granny's wonderful cooking (her famous sweet potatoes and salads........) Things will never be the same without them but they are now together in heaven.
I believe I've covered the "major" happenings with Team Hyndman since our last post. Again, I hope to post more regularly and get caught up on some pictures soon too. (fingers crossed!)
Blessings:-)
Amy
PaPa Jagel and Nick @ UT vs. Crash Game
I don't even know where to start as it has been so long since my past post! Thank you for anyone still reading this for your patience! As you may know if you've read my previous post, I've been ill this past year (actually before that even) and if I am going to be totally honest, it has really been a horrible year with my recovery. Hey, I want to be truthful and not just "put a socially acceptable mask" on what I write. I've always done that in a sense, at least in my personal life, "put a positive face" on (for lots of reasons) and tried to hide the truth about the tough stuff or keep it to myself and with all that has happened, I just have no desire to do that anymore. I want to continue to keep a positive attitude as much as possible, but I'm human. So, here is the update. I am doing a lot better but still working on my recovery. I still have a lot to do physically. I will be on my antibiotics for the rest of this month and then off of them for the first time in a year and have to get blood work every three weeks until the end of the year. I will probably at some time need another back surgery but I hope not anytime soon. Pain-wise, I am in constant pain between my back and Fibromyalgia and the only way my back pain will improve will probably be with surgery but it is not a 100% guarantee per my neurosurgeon and so I am going to try physical therapy and acupuncture which I am starting soon. I still have open wounds on my feet from Hilton Head (June 2011) burns on the beach on my feet, so that has kept me from doing the PT and more before now as well as pain and side effects from meds. I am weaning off of other meds too for pain and seizure meds, etc. but am having a hard time with that too. I am much more alert than I've been since last May when I went into the hospital, and I like that! I hate feeling "drugged up" and sedated. I have decided to go see a counselor/therapist too and am in the process of looking for one. I have no shame in sharing this, nor should I. Let's me honest.....being sick for so long, almost losing my life last May, being in constant pain, having to burden my family and loved ones with taking care of me and everything else (the house, meals, the pets) which makes me feel really guilty and badly and has caused a lot of issues, well, all of this has made me depressed. One more thing I need to deal with and I am going to do just that. I realize that I am not a "super woman" like some women are, I am just human and don't want to be a burden anymore, so I know I need help!! I am actually looking forward to the trying acupuncture, PT when I can, and talking to a counselor or therapist who can help me figure out where to start and go from here! Having shared all of that, these are the reasons I have not written or posted or kept on on Facebook or e-mail for some time now.
Team Hyndman has had a lot of things going on since my last post!!! We have a new addition to our family! Over the holidays/New Years, we got a new puppy, Olive Lou Hyndman. She is now 6 months old and is a Boston Terrier like our Oreo was. She is so fun, full of love, and a spit-fire! We love her and she keeps us busy!! Ozzie and Charger love her too.
Nick just finished his second year at The University of Toledo and is still a business major and wants to minor in Disability Studies. He's been busy this year with The Toledo Crash (wheelchair football team) and they played at Lourdes College and again against The University of Toledo football team and The Crash won and Nick got MVP for the game! They were on the news, which I'll post on here soon. He's been writing more music and recently spoke for a local school district in Findlay, Ohio for a disability awareness expo.
Isabella has been enjoying 7th grade, band and choir at school and she took the year off of dance this year and I'm not sure how she feels about that. I think she is trying to figure out what she wants to do, be social, get good grades, and be a 13 year old girl! She is still even more of an animal lover and such a big help to everyone in the family! She loves to cook, and cooks a lot of meals and bakes a lot. She's always thinking of others, doing things for others, and is not worried (at all) about being "popular" or self-centered like a lot of girls her age seem to be. She's super sensitive, which I think is one of her best qualities, and with maturity and experience, this will serve her and the world very well. It's hard to be so sensitive at her age though. She takes after me so I remember what that was like at that age. (ugh!)
A lot has happened with my Mom and Dad since my last post. (PaPa and NaNa Jagel) They just had to put their almost 12 year-old dog, Johnnie, to sleep this past week which was really sad for everyone. He had been my sister's dog, then my Mom and Dad's and he was very sick with cancer. The biggest news is that my Mom is a match for my Dad for a kidney. (I'm not up to writing all of the correct medical terms right now....) They are signed up at Henry Ford Hospital in Detroit, MI. My Mom is having a tough time as she has to get off of her meds for Fibromyalgia so she's in a great deal of pain and is in the process of getting all of the tests needed to be able to donate her kidney to my Dad. I must admit, I have mixed feeling about it all because I worry about them both, but we are just here to love and support them in any way we can. We could still use prayers for them. My Dad is still on dialysis of course and is still helping Nick out as his home health care aide too. (wow!!!) He's still doing things for other people all the time even while in dialysis! My Mom is taking a leave from work with everything going on and how she's been feeling lately getting off of her meds, etc.
We were also sad that Greg's Granny Luther died this year. The kids called her "Great Granny" and when Bella was little she called her "Aunt Granny":-) It's sad because we think of Granny and PaPa at our wedding almost 23 years ago, Granny's wonderful cooking (her famous sweet potatoes and salads........) Things will never be the same without them but they are now together in heaven.
I believe I've covered the "major" happenings with Team Hyndman since our last post. Again, I hope to post more regularly and get caught up on some pictures soon too. (fingers crossed!)
Blessings:-)
Amy
PaPa Jagel and Nick @ UT vs. Crash Game
Our puppy Olive Lou Hyndman
(I love you Olive Lou)
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