We are The Hyndman Family, or "Team Hyndman" as we call ourselves: Greg, Amy, Nick, and Isabella. This blog is created to share our story and experiences living with Nick's disabilities. Nick has cerebral palsy and progressive hearing loss. We hope we are able to share not only our story, but information and resources we've learned about along the way, educate others about cerebral palsy, and meet other families and individuals living with cerebral palsy.
Tuesday, April 17, 2012
Dog Days Of Summer - June 7, 2012 - Information Below
Walk For Williams Syndrome - May 19th 2012 Perrysburg, Ohio
Hi all,
I received this e-mail today from my friend Michelle:
We are holding the very first Northwest Ohio Williams Syndrome walk onMay 19th from 9 AM to 1 PM - My son, Alex, was born with Williams syndrome and the WSA has been instrumental in providing information and funding research. This is a very rare condition and people will be coming from all over northern Ohio and southern Michigan to attend. The event is at Grace United Methodist Church and then we will walk at Woodland Park. After the walk, there will be carnival games, entertainment provided by the Perrysburg High School Show Choirs and lunch. To register or make a donation visit: www.walk4williams.org Online registration ends April 27th. You can contact me if you would like to help with the event or have any questions. Michelle Self maselfadvocate@hotmail.com Alex would love to see you there!!!!!!!!!!!!!!!!!!!!!!!! The picture is of Alex and his new therapy dog, Hamden! Thank you!!!! Michelle
http://www.walk4williams.org/
If you are able to join the walk, that would be GREAT but whether you can walk or not, please pass this information on to anyone you know who may be interested and able to walk. You can also click on the link above and make a donation as well as get more information.
Thank you!
Blessings:-)
Amy
We are holding the very first Northwest Ohio Williams Syndrome walk onMay 19th from 9 AM to 1 PM - My son, Alex, was born with Williams syndrome and the WSA has been instrumental in providing information and funding research. This is a very rare condition and people will be coming from all over northern Ohio and southern Michigan to attend. The event is at Grace United Methodist Church and then we will walk at Woodland Park. After the walk, there will be carnival games, entertainment provided by the Perrysburg High School Show Choirs and lunch. To register or make a donation visit: www.walk4williams.org Online registration ends April 27th. You can contact me if you would like to help with the event or have any questions. Michelle Self maselfadvocate@hotmail.com Alex would love to see you there!!!!!!!!!!!!!!!!!!!!!!!! The picture is of Alex and his new therapy dog, Hamden! Thank you!!!! Michelle
Alex and his therapy dog, Hamden
http://www.walk4williams.org/
If you are able to join the walk, that would be GREAT but whether you can walk or not, please pass this information on to anyone you know who may be interested and able to walk. You can also click on the link above and make a donation as well as get more information.
Thank you!
Blessings:-)
Amy
The Toledo Crash VS. The University of Toledo Varsity Football Team April 22nd, 2012 - Join Us!
Hi all!
Please join us this Sunday April 22, 2012 at 1:00 pm at The University of Toledo's Rec Center to see The Toledo Crash, Nick's wheelchair football team, play The University of Toledo's Varsity Football Team! Of course UT's team will play in wheelchairs too. It's a fun game to watch!
We'd love to get a lot more people to attend these games so join us if you can and please pass this info. on to anyone you may know who would be interested.
On a side note, Nick recently got his new sports wheelchair! It is titanium, which is the best part to us, so it can take a lot of bumps and hits which means less wheelchair repairs / expenses for us!:-) It's made for wheelchair court sports like football, basketball, rugby, etc. It's light and easy to move in. Also, speaking of wheelchair rugby, if you've never seen the movie Murderball, rent it. It's a great movie about wheelchair rugby players. I'll warn you, there are sex scenes and a lot of bad language, but it's totally worth watching the movie even if these things offend you (you can skip those parts!) because it's inspirational and just a great movie!
Here's a few pics of Nick's chair:
Please join us this Sunday April 22, 2012 at 1:00 pm at The University of Toledo's Rec Center to see The Toledo Crash, Nick's wheelchair football team, play The University of Toledo's Varsity Football Team! Of course UT's team will play in wheelchairs too. It's a fun game to watch!
We'd love to get a lot more people to attend these games so join us if you can and please pass this info. on to anyone you may know who would be interested.
On a side note, Nick recently got his new sports wheelchair! It is titanium, which is the best part to us, so it can take a lot of bumps and hits which means less wheelchair repairs / expenses for us!:-) It's made for wheelchair court sports like football, basketball, rugby, etc. It's light and easy to move in. Also, speaking of wheelchair rugby, if you've never seen the movie Murderball, rent it. It's a great movie about wheelchair rugby players. I'll warn you, there are sex scenes and a lot of bad language, but it's totally worth watching the movie even if these things offend you (you can skip those parts!) because it's inspirational and just a great movie!
Here's a few pics of Nick's chair:
Nick now has a manual wheelchair (we use when we have our van, not Nick's van, because our van does not have a wheelchair lift and this chair is light and we can lift it in and out of our vans-plus he needs to propel in this chair or have someone push him), a power wheelchair (he uses on campus and when he's out and about and when we have his van with the wheelchair lift), a beach wheelchair we got recently for use on the beach and in sand (we can't use any of his other chairs in the sand, the can't propel in sand-the beach wheelchair has huge wheels for sand), and now his sports wheelchair for court sports, a walker (he really doesn't use this much anymore, it's not so efficient), a Segway with a special seat we had made for him, his paralympic hand-peddled bike, his AFO's (Ankle-Foot Orthotics or what we call "leg braces"), his hearing aids and FM system for his hearing aids, and of course his new van with a wheelchair lift. Insurance paid for his manual wheelchair and his power wheelchair, as well as about 75% of his AFO's and that's it.
I think we need to build a shed one of these years coming up to hold all of his equipment which is mostly all in our garage or his van and the house. But we wouldn't have it any other way:-) It's just how Team Hyndman rolls!
Blessings:-)
Amy
Greg's license plate - "Team Hyndman"
Wednesday, April 4, 2012
Nick's Song on iTunes
http://itunes.apple.com/us/album/the-man-ill-never-be/id516288517?i=516288524
Hi all,
I've posted before that Nick likes to write poetry and songs. He's written several songs actually, and he just put one of them on itunes! (www.iTunes.apple.com) It's called "The Man I'll Never Be" by Nick Hyndman. So, CHECK IT OUT and buy it!!!!! Spread the word please! Thanks!
Pretty impressive for someone who is hearing impaired with cerebral palsy, huh? Not that we don't know how smart and talented he is in a lot of areas but we're happy he enjoys music so much and likes to spend his spare time creating. Way to go Nick!!!!
Blessings:)
Amy
Hi all,
I've posted before that Nick likes to write poetry and songs. He's written several songs actually, and he just put one of them on itunes! (www.iTunes.apple.com) It's called "The Man I'll Never Be" by Nick Hyndman. So, CHECK IT OUT and buy it!!!!! Spread the word please! Thanks!
Pretty impressive for someone who is hearing impaired with cerebral palsy, huh? Not that we don't know how smart and talented he is in a lot of areas but we're happy he enjoys music so much and likes to spend his spare time creating. Way to go Nick!!!!
Blessings:)
Amy
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